There is no denying that even with an experienced care team, a supportive group of family and friends, and being trained how to operate your upper limb prosthesis, having an upper limb amputation can be frustrating. Of course it is! Many of our patients have spent years with two sound upper limbs. And then there’s the reality that most of the world is designed for people with two hands.

So, what is causing this frustration and how do we deal with these issues? Take a look to see if you are experiencing any of the following challenges:

Limited Function:

Until we reach “Luke Skywalker at the end of ‘The Empire Strikes Back’” levels of upper limb prostheses, function will be somewhat limited. Although myoelectric prostheses are becoming more advanced, they are still not a human hand. But that doesn’t mean that work, home and leisure activities cannot be completed. Work tasks can often prove difficult. If someone is having trouble with work tasks, the answer may be to have them instead focus on a recreational goal. Our occupational therapist at the Minneapolis center, Becky Park, has had success with this suggestion. “Focusing on a recreational goal allows the patient to develop functional skills with an enjoyable activity. These functional skills then can be transferred to work related tasks and potentially improve their function with these tasks as well. This is a great way to improve functionality because the person is completing enjoyable tasks that they are highly motivated to perform.” Once the patient has mastered that skill, they can move the skill over to work and find an easier time with that particular task.

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Learning Curves:

Coming home with your first device or multiple devices can be overwhelming. There are so many tasks to complete each day, how are you supposed to know how to do all Activities of Daily Living, and job tasks beyond that? Our patient Dakota, a shoulder disarticulation amputee from our Dallas center, found a way to avoid frustration during his learning curve with his device. While Dakota was learning to utilize his myoelectric device, he would only wear his prosthesis for one activity, working on becoming proficient with use of all of the components with that one task (which is a lot when there is a hand, elbow and shoulder to consider!). He said he consistently wore the prosthesis when he was taking care of his pigs. After becoming proficient with use of all of the components with these chores (and, of course, focusing on good body mechanics), he then will pick another activity to focus on mastering.

Dakota also passed on another piece of guidance, which he thinks is the best advice he was given after his amputation: it is okay to take breaks when needed. If he pushed too hard when he was frustrated, he often noticed a reduction in his ability to efficiently operate his myoelectric controls.

Being Forced to Live a “New Normal”:

After an amputation, life is not the same. You can’t go back. Coming to terms with this and figuring out how to move forward can feel very frustrating, because it’s a life change that you didn’t choose.

Tom Seibert Ski-topaz-standard-2x

What is the solution to being frustrated with a new normal? It may simply be time. Our patient Tom (pictured above) was in a wakeboarding accident as a teenager in 2009, and did an interview with us again years later. “I think that for getting past those initial stages of limb loss, time is a huge part of it because you can do all these different things to kind of help yourself improve, whether it's physically or mentally. I think it does take a certain amount of time and interactions to not see yourself as diminished or as missing something.”

There are other ways to allay frustration. One of our biggest pieces of advice is to connect with a peer. Speaking with, meeting or even watching the story of someone with an upper limb amputation can make a huge difference in your outlook and be an inspiration to keep trying with your prosthesis/prostheses. You can learn more about the benefits of peer support in our articles The Lived Experience: Peer-to-Peer Support at Arm Dynamics and How to Move Forward After an Amputation.

Other articles with advice from our patients and clinicians on moving past frustration include When You’re Feeling Stuck as an Upper Limb Amputee, Finding Joy After an Upper Limb Amputation and After an Amputation, How Can I Get Back to Feeling Like Myself?

Gerry and Chris Buck

If you or someone you know is looking for the most experienced upper limb specialists in the United States for their prosthetic care, please contact us. Each of our prosthetists is certified by the American Board for Certification (ABC), and each of our clinical therapy specialists is a qualified occupational therapist. They all have one goal in mind: returning our patients to their work and home lives. If you would like to leave a comment, please do so below.

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